Information for Healthcare Professionals (SRT)

The Endometriosis Cymru Symptom Reporting Tool (EC-SRT) is an evidence-based tool that patients can use to track key symptoms of endometriosis as defined by the NICE guidelines.  

The tool is for individuals experiencing symptoms they suspect might be due to endometriosis. 

The tool is available in either a paper copy or website format. Patients initially complete the medical and risk factor history questions, and then use the tool daily to track the 5 NICE guideline symptoms of endometriosis. Using the tool, patients will report the pain intensity and functional impact of each symptom they experience over a 2-month period.  

Through using the tool, patients can generate a one-page summary report to share with their doctor, to facilitate a conversation about these symptoms. Please note, the EC-SRT alone does not provide a diagnosis of endometriosis. Users of the tool are advised of this, and that the results must be discussed with a healthcare professional.  

The tool can also be used to track the effectiveness of treatments for endometriosis symptoms over time. 

What is the purpose of the Endometriosis Cymru Symptom Reporting Tool? 

The aim of the EC-SRT is to reduce diagnostic delays for endometriosis through positive and efficient healthcare experiences for both patients and healthcare professionals. In Wales, it currently takes on average of 10 years or 26 appointments to receive a diagnosis for endometriosis (Endometriosis UK, 2024; Welsh Government Endometriosis Task & Finish Report, 2018). This is longer than other parts of the UK and means that individuals with endometriosis are living with painful, difficult symptoms for many years before receiving treatment or support.  

The tool was designed to reduce diagnostic delays for endometriosis by: 

  • Empowering individuals who experience potential symptoms of endometriosis to seek healthcare.  
  • Providing healthcare professionals with key information about the patient’s endometriosis symptoms based on the NICE endometriosis guidelines and the impact of these symptoms recorded daily over two months 
  • Raising healthcare professionals’ suspicion of endometriosis if appropriate. The tool may also provide useful information to healthcare professionals and users if the symptoms are not consistent with endometriosis.  
  • Provide information about the pattern that symptoms follow over time, e.g., across the menstrual cycle 
  • Facilitate positive and constructive healthcare conversations and experiences for both patients and healthcare professionals 

Who made the Endometriosis Cymru Symptom Reporting Tool? 

The Endometriosis Symptom Reporting Tool was made by a team of researchers at Cardiff University, individuals with lived experience of endometriosis, public advocates for endometriosis, Fair Treatment for the Women of Wales, and digital design experts, Proper Design.  

While building the tool, we consulted with healthcare professionals who treat endometriosis, including GPs, gynaecologists, endometriosis specialist nurses, sexual health clinicians, and members of the NHS with expertise in digital healthcare and app design.  

Additional support and funding for the tool was provided by the Welsh Government, NHS Wales, and the Medical Research Council (MRC). 

How do I use the Endometriosis Cymru Symptom Reporting Tool with my patient? 

You can direct your patient to the tool. This webpage includes instructions on how to use the tool. 

We recommend that patients track their symptoms for at least 2-months. Following this, they can generate a report to share with you that summarises their risk factors, relevant medical history, and the nature and pattern of their symptoms over time.  

For more information about endometriosis

  • Please visit the NICE endometriosis Guidelines 
  • If you would like more information about health pathways for endometriosis in primary care, please visit the Endometriosis Health Pathways page in your health board.  

Do you have any questions or feedback?  

We are looking to continue to improve the tool and would love to hear from you.  

If you have any questions, please contact the Endometriosis Cymru Symptom Reporting Tool Team at cfrr@cardiff.ac.uk.