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Personal Stories

Endometriosis can affect people’s lives in many ways. Explore this collection of first hand experiences from people with endometriosis, how it’s affected their lives, and what has helped them.

  • Karen’s story

    Karen is a medical student and is in her final year of studying before she graduates. Karen has endometriosis and has experienced challenging symptoms and circumstances throughout her education.

  • Amy’s story

    Amy is 39, lives with her gorgeous pug Blaise and works at Admiral – an endometriosis friendly employer.

  • Dee’s story

    Dee has been diagnosed with both endometriosis and adenomyosis and found that pelvic physiotherapy had a significant and positive effect, enabling her to manage her symptoms.

  • What? By Eliza Wolfson

    With endometriosis, cells are found where they shouldn’t be, and it’s common for people to be misdiagnosed.

  • Where? by Tamsin Walker

    Although it’s true that many women with endometriosis suffer bad periods, there’s a common misconception that that’s all endometriosis is.

  • One in Ten

    1 in 10 women in Wales are living with endometriosis.

  • Invisibility

    You can’t tell someone has endometriosis by looking at them. How does it feel to live with an invisible disease?

  • When? by Elizabeth Querstret

    Endometriosis affects about one in ten women. In Wales alone that could mean as many as 160,000 people living with this invisible disease.

  • Julia – Social animals

    When I linked up with those on Facebook, my outlook changed a lot because I realised that I wasn’t on my own.

  • Jaimee Rae – Out in the open

    The EndoWalls are there to let those suffering with endometriosis know that they’re not alone.

  • About Endometriosis Cymru
    • Endometriosis Nurses in Wales
    • What’s happening in Wales?
    • Endometriosis Cymru Inclusivity Statement
  • The Endometriosis Cymru Symptom Reporting Tool
    • How to use the Symptom Reporting Tool
    • Information for Healthcare Professionals
    • The Symptom Reporting Tool FAQ
  • Frequently asked questions
    • Getting a diagnosis
    • Fertility & pregnancy
    • Definitions & symptoms